I was diagnosed with Parkinson’s in April 2016. Since then, we’ve been on a long, winding journey. Parkinson’s brings a lot of different effects, and in my experience there are some that are especially challenging to live with day to day. Constipation, pain in various places, and fatigue are common. But lately, the issues that…… Continue reading Living with Parkinson’s: A Personal Perspective on Hallucinations, Time Distortion, and the Need for Calm
Tag: Life
Catching you all up and Thanks for all the Fish
It was about two weeks ago that I turned to my partner and said that my pain was becoming bad and we needed to head down to the ER. Although we don’t keep prepared bags, we both know what to bring when going to the ER. Laptops or handheld tablets, charging cables and adapters and…… Continue reading Catching you all up and Thanks for all the Fish
Yesteryear’s Christmas
We were driving along the West side highway, close to the end of our journey to grandmother’s house. To be a little more specific an upper west side four bedroom apartment overlooking the East side. We were traveling, as usual, a few days before Christmas which kept the traffic pain to a minimum. As we…… Continue reading Yesteryear’s Christmas
Sometimes the Wonder Takes Me
It was the other night as I lay in bed. The lights were on and I was between watching YouTube videos – a bad habit of mine and now you know! Lying there I was overcome by two feelings. One was feeling as peace and the other was feeling whole. The man that I used…… Continue reading Sometimes the Wonder Takes Me
Living in a state of gratitude
Oh, I have my days. Days I don’t want to smile or get out of bed, put away dishes and hardly want to make the effort of getting food for sustenance. We all do, short sighted days where our lives consist of a small box and we’re sitting in a small corner kicking our heels…… Continue reading Living in a state of gratitude
Being Helpful
It was the early 90s. I was in my 30s and I’d go to Temple events. After I would sometimes want to help out so I’d go ask someone what I should do. They always looked a bit annoyed but sometimes made a suggestion. Even a polite one. There are layers to being helpful. Asking…… Continue reading Being Helpful
Happier days
I think I underestimate how corrosive even a single source of stress can be. I know I underestimated how positive finding an activity would be. My stressors were reduced by one – my disability was approved. This was a huge relief, and I finally let out the breath I had been holding in for months.…… Continue reading Happier days
Do I have Hate in my Heart?
(from my posting in Quora) No, I don’t Hate is like an acid that eats away all that is beautiful in your life leaving the ashes of once verdant meadows and fresh running streams. Hate dims the smiles from your friends and loved ones. Hate turns the loveliest food to dust in your mouth and…… Continue reading Do I have Hate in my Heart?
Why I’m Thankful
I’m thankful to wake each morning in a safe sheltered place, far from the violence that haunts so many in this world. My abode keeps me dry and warm or cool regardless of the seasons, and provides a backdrop for me to pursue my activities. I’m thankful to have many people who love me in…… Continue reading Why I’m Thankful
Winter’s Forgotten Love
Among the many changes in my life has been the number of people I love who no longer know me. Sometimes I pass through a stage of fire, a stage of grief or a stage of anger. But if I loved them I eventually stand on the shore and let their memory go and try…… Continue reading Winter’s Forgotten Love
My Gifted Life 